|
|
|||||||||||
Rob Macpherson is a consultant rehabilitation psychiatrist at Wotton Lawn (a psychiatric hospital in Horton Road, Gloucester GL1 3WL, UK. E-mail: rob.macpherson{at}glospart.nhs.uk). He is medical adviser to a charity that provides domiciliary support to people with severe mental problems, and he has previously worked with Rethink and a housing association on the development of supported flats. Geoff Shepherd is Director of Partnerships and Service Development for Peterborough Mental Health NHS Trust. Tom Edwards is a specialist registrar in psychiatry at Wotton Lawn, Gloucester.
| Abstract |
|---|
|
|
|---|
The closure of the long-stay psychiatric hospitals in the UK might be seen as the most radical change in the nations public health policy in the 20th century, and it resulted in a major reprovision of services in what is usually known as community care. In this article we attempt to describe the mixed economy of care that is now available for people in the UK whose mental health affects their ability to live independently.
It is important to note that we focus purely on longer-term accommodation for patients with severe mental illnesses and that we do not consider the important issue of alternatives to acute hospital care (an area that has been reviewed by Boardman & Hodgson, 2000).
| What is supported accommodation? |
|---|
|
|
|---|
| Different forms of supported accommodation |
|---|
|
|
|---|
| Box 1 Supported accommodation and main service providers (Lelliott et al, 1996) Long-stay wards: usually in large NHS hospitals High- and medium-staffed hostels (24-hour nursed-care units): provided variously directly through the NHS, via the private and voluntary sectors and via local authority social services departments Low-staffed hostels: mostly the private and voluntary sectors (a very few are run by local authority social services departments) Staffed care homes: the private and voluntary sectors, with some local authority social services departments Group homes: the voluntary sector and local authority social services departments Core and cluster/high-dependency housing: mostly charitable organisations and housing associations
|
Long-stay wards
Usually part of larger National Health Service (NHS) hospitals, long-stay wards generally have lower staffing levels than acute wards. Their provision is highly variable and some districts now operate services entirely without explicit continuing-care hospital provision.
High- and medium-staffed hostels
These hostels are also known as 24-hour nursed-care units. They vary in status from hostels funded and run by the NHS to nursing homes and residential care homes provided by the private or voluntary sectors. Voluntary/charitable provision may be through mental health charities such as Mind and Rethink. These units often occupy large, older detached houses in the residential areas of cities. Staffing levels vary from 8 to 20 workers per unit, and each unit typically provides for 6 to 12 patients. Night staff may remain awake or work sleep-in rotas. For a fuller description of this type of unit see Shepherd (1998a).
The 24-hour nursed-care units within the NHS typically operate as part of a district rehabilitation service, whereas private- and voluntary-sector care homes operate outside the NHS and can receive referrals from any source.
Low-staffed hostels
Low-staffed hostels typically have day cover only, provided by a small number (usually two or three) staff. Far fewer of these staff have care qualifications than do staff in long-stay or acute wards (15% v. 49% and 63% respectively; Lelliott et al, 1996).
Staffed care homes
Also known as supported lodgings or adult fostering homes, these usually have a very high proportion of unqualified staff, who are appointed as carers, generally through a care scheme operated by local authority social services departments. Units vary from small, family homes with up to 3 residents to larger establishments with up to 12 residents in a type of supported hostel, with resident care home staff. Anstee (1985) has given an overview of the supported lodgings scheme.
Group homes
These are not staffed, but are typically houses owned and managed by local authority social services departments, with up to 5 residents. They generally have regular visits from support workers through local social services or mental health rehabilitation services.
Core and cluster (high-dependency) housing
In this more recent model of care, individual flats or bedsits are overseen by a core staffed unit or by visiting support staff, who may be employed by statutory services (the NHS or local authority social services). However, they are more commonly run by charitable organisations such as Rethink or by various housing associations. Provision of this form of accommodation, which is described by Carling (1993), has increased greatly in the past 10 years.
| Who needs supported accommodation? |
|---|
|
|
|---|
Old long-stay patients
The old long-stay patients are those whose hospitalisation pre-dated the deinstitutionalisation movement that started in the 1960s, but have remained in-patients. This group is now very small, and is non-existent in many districts.
New long-stay patients
The term new long-stay patients was created by Mann & Cree (1976) to refer to patients who, despite modern treatment approaches and the ideology of community care, cannot be discharged from hospital, owing to their level of psychopathology, disability or behavioural disturbance.
The community care generation
The health care system now includes a large group of patients who have responded to treatment, but have residual symptoms and require ongoing care and support, but do not have access to family or similar help. Historically, these patients care pathways would have often involved lengthy periods in psychiatric hospitals. However, in the current health care system some of these patients may never have been psychiatric in-patients.
Lamb (1998) has described consequences of the loss in the USA of long-term institutions, including an increase in rates of severe mental illness among prison and homeless populations. He cites high rates of disturbance in the residual psychiatric hospital population, and suggests that present-day psychiatric patients have not been institutionalised to passivity by lengthy in-patient treatment. The position in the UK is less clear, perhaps in part because alternative supported community placements have been developed, albeit in an inconsistent, variable form.
Although attempts have been made (Lelliott & Wing, 1994) to assess the numbers of new long-stay patients, and indeed match these to existing residential care facilities, there is no clear method to assess the need for supported accommodation among the broader psychiatric population the community care generation and this area remains unclear and insufficiently researched. Local provision is highly varied and largely determined by historical patterns of development (Lelliott, 1996). At best, imprecise norms for differing forms of supported accommodation have been proposed (Johnson et al, 1996). There is no simple system to assess overall need in a locality and no generally recognised instrument to assess housing need at an individual level (Strathdee & Jenkins, 1996).
| Patient selection for different types of unit |
|---|
|
|
|---|
In theory, patients who have better living skills (able to manage self-care, budgeting and shopping) would be likely to cope in more independent settings. There is also evidence of higher levels of psychopathology (Simpson et al, 1989) and dependency (Robson, 1995) in hostel residents and rehabilitation patients in hospital than in residents of group homes. Shepherd et al(1996) confirmed this in a detailed analysis of 25 residential units in London, but interestingly found that staffing ratios in community homes bore no relationship to levels of dependency.
A key issue in selection is patient choice, and a developing literature indicates that patients are increasingly dissatisfied with the traditional, institutional model of supported accommodation. When asked, they tend to express a preference for independent accommodation that allows for privacy. They also prefer to have access to flexible levels of support when needed, as opposed to support being provided as part of their accommodation (Tanzman, 1993; Rose & Muijen, 1997).
In practice, there is considerable overlap across different types of supported accommodation in terms of the types of patient being cared for. Ideally, a locality-based accommodation system should include a broad range of facilities with differing levels of support that allows individual choice to be accommodated as much as possible. The reality is rather different and presents a picture of extensive geographical variation, with typically fragmented, poorly organised systems for allocating special needs housing and a stark lack of awareness of unmet need within the system.
Recently, more systematic approaches to assessing need for accommodation have been developed in some countries. Durbin et al(2001) reported a Canadian project commissioned by the Ontario Ministry of Health to identify alternative placements for current hospital in-patients. The process involved multidimensional assessment of need incorporating the Colorado Client Assessment Record and use of stakeholder panels to assess need across the whole system, rather than in a single programme. Five levels of care were developed, and it was concluded that only 10% of current in-patients needed to remain in hospital and that 60% could live independently in the community with appropriate support. The results of this project will be interesting to follow.
Fitz & Evenson (1999) reported on a new tool, the St Louis Inventory of Community Living Skills, developed to help clinicians recommending residential settings appropriate for people with mental health problems. They concluded that community living skills, social skills and problem behaviour were primary characteristics affecting adjustment to residential settings. In a related area, Bartlett et al(2001) analysed 730 acute admissions, finding that 35% of patients had been inappropriately placed at some time and that many of the patients might have benefited from alternative, mostly community-based, services. In 24% of cases divertible to community care it was considered that specialist accommodation supported by nurses or care workers would provide an effective alternative to acute hospital care.
| Historical patterns of residential provision |
|---|
|
|
|---|
A UK audit (Lelliott & Wing, 1994) revealed an average point prevalence of 6.1 new long-stay patients per 100000 population, while many English services had few long-stay psychiatric beds: 31% of new long-stay patients were housed on acute wards and, of the 47% of these patients who were thought to require a community placement, half remained on acute wards owing to a lack of available resources. Concerns about blockage of acute beds and the increasing pressures on acute hospital services have been most apparent in London and other large cities; the Monitoring Inner London Mental Illness Services (MILMIS) Project Group reported true bed occupancy levels of 130% (MILMIS Project Group, 1995). The Government was aware of such pressures on overall provision, and as early as 1991 had issued guidance proposing that more 24-hour nursed-care beds should be commissioned (Department of Health, 1991). Whether this guidance has been heeded remains unclear: these relatively expensive units would require considerable additional funding, estimated at between £25000 and £50000 per bed annually (Department of Health, 1996). Where hospital closure has already occurred, there has been no clear system to identify new funding for this UK Government priority. It appears that further research to identify current levels of provision of 24-hour nursed care and to set this in the context of the increasing levels of low secure provision would be of value.
The problem of pressure on acute beds cannot be viewed in isolation (Shepherd, 1998b), and in order to carry out a meaningful assessment of a locality, an understanding of the total provision of hospital, hostel and supported accommodation should be attempted: levels of different forms of accommodation vary greatly and adequate levels of one form can to some extent compensate for deficiencies in others. It is important that homeless people are not overlooked, as there is known to be a higher level of psychiatric illness in this population and they may gain particular long-term benefit from specialist supported accommodation.
| The mentally ill prison population |
|---|
|
|
|---|
It is unclear whether the deinstitutionalisation movement has led to real increases in the numbers of severely mentally ill people in the UK prison system. However, Lamb (1998) is sure that in the USA it has. He presents two arguments to support this view: the large numbers of mentally ill prison residents, and the observation that a high proportion of mentally ill people found in the criminal justice system resemble in most aspects those who used to be in long-term psychiatric institutions. Within the UK system it is clear that prisons are sometimes used to accommodate difficult patients with challenging behaviour who do not readily fit into modern short-stay acute NHS facilities, and it also appears that a small number of people with severe mental illness are inappropriately placed in the criminal justice system.
| Recent trends in supported accommodation |
|---|
|
|
|---|
Current approaches to clinical risk management, underpinned by centrally driven policies in this area, may also have a significant effect on the overall deployment and balance of supported accommodation for people with severe mental illnesses. The increasing numbers of medium and low secure beds, often provided through private organisations, to deal with patients who present challenging behaviour should also be seen as a component of the total provision.
| Policy background |
|---|
|
|
|---|
Changes to the Mental Health Act 1983 may also have had an impact on accommodation issues. The Patients in the Community Act 1994 empowered doctors to place patients in defined accommodation following compulsory treatment in hospital. However, use of this legislation appears to have been limited by practical difficulties, in particular in dealing with crisis. It appears that levels of use of this part of the Mental Health Act are in practice patchy and inconsistent.
| The research evidence |
|---|
|
|
|---|
The evidence base for staffed care homes or core and cluster accommodation is less well established, although a review in this area demonstrated a strong user preference for independent private flats and for flexible outreach support (Tanzman, 1993). A North American study (Keck, 1990) suggested that an approach that aimed to provide normal housing, together with practical assistance was largely effective and was associated with a dramatic decline in hospitalisation. Other studies, from the USA and Scandinavia respectively, have found high levels of independent social functioning (Segal & Kofler, 1993) and improved quality of life (Middleboe et al, 1998) in core and cluster units. A comparative evaluation in the USA undertaken by Nelson et al(1997) found that residents of supported apartments, group homes and board and care homes (similar to supported lodgings in the UK) all had positive outcomes over time in terms of work and education. Residents in the group facilities reported that they experienced greater support and lower levels of abuse than those in the other settings. Those in supported apartments and group homes spent less on rent and made more decisions about various aspects of their life.
There is little evidence in the literature of differing effectiveness between the various forms of community provision. This is perhaps not surprising in a health care system where different units are perceived to cater for different types of patient (i.e. with different levels of dependency) and levels of challenging behaviour. Some patients benefit from the support and increased contact of group living and may otherwise face loneliness, isolation and neglect. Older patients are vulnerable to physical decline and poor quality of life without support. In practice, it seems that access to a range of different forms of supported accommodation, through which patients may move according to need as well as by choice, at different times in their lives or phases of their illness, is an ideal worth aspiring towards.
Evidence from the TAPS study
An important consideration in research in this area is the overall effect of hospital closure in a locality. The Team for the Assessment of Psychiatric Services (TAPS) generated extensive evidence regarding the progress of long-stay hospital patients leaving Friern and Claybury hospital in North London (Leff, 1997). In a carefully planned process, which involved the allocation of a funding dowry to each discharged patient, patients were carefully followed up and evaluated over an extended period after they moved from long-term hospital to community care. One year after discharge, 49% of the patients were living in large hostels, residential or nursing homes; 15% were in community in-patient accommodation (which we take to mean directly provided NHS hospital hostels); 12% were living independently; 6% were in staffed group homes; and 4% were in unstaffed group homes (Beecham et al, 1997). The remainder were in sheltered housing or foster care. Compared with matched controls remaining in hospital, the community group had reduced negative symptoms, improved social functioning, increased social networks and greatly increased levels of satisfaction. There was no difference, however, in positive symptoms, physical health status or rates of suicide and crime. Overall, costs were slightly lower for the community group.
The results of the TAPS programme, together with the results of research into 24-hour nursed care and a large number of uncontrolled studies of patients in the community (e.g. Borge et al, 1999), have been widely viewed as supporting the value of alternative community provision for long-term hospital in-patients.
| The cost of community care |
|---|
|
|
|---|
| The need for a total system approach |
|---|
|
|
|---|
The development of systems to identify existing provision and met and unmet accommodation needs in a local region will help to establish the case for further resources. It has been recognised (Audit Commission, 1994) that budgeting for the needs of patients following psychiatric hospital closure was never really adequate and there appears to be a recognition in the Supporting People initiative that increased resources will be needed to fund this area properly. Franklin (1998) has stressed the importance of real integrated approaches, good communication between different agencies and shared approaches to assessing housing need.
In a study that formally assessed individually rated patient need against costs and care being provided for tenants of a housing association in London, Järbrink et al(2001) found that there was no simple relationship between measured needs and the level of care provided, or between the level of care provided and improvement in basic living skills. However, interestingly, cost variations were related to need and to the quality of the housing environment. Kinane & Gupta (2001) have studied the relationship between usage of health services and the costs of providing different forms of health care, noting that although vulnerable residents in the care homes they studied were costing the health services relatively little, there was a need for multi-agency planning at a local level to avoid gross inequities of provision and the problem of localised proliferation of services, which can lead to a transfer of morbidity from the original catchment area.
Box 2
lists the types of accommodation that should be available within any local area, and this list represents the spectrum of accommodation that should be demanded by general and rehabilitation psychiatrists. The need for development in a particular area would depend on current provision across the spectrum, and identifying this need could be seen as a gap analysis.
Box 2 The range of residential support which should be available in a locality for people with mental health problems
|
| Quality issues in supported accommodation |
|---|
|
|
|---|
In-patient facilities provided by the NHS are now so clogged up with the most difficult patients (Carson et al, 1989) that they have limited capacity to respond to crisis in patients in private-sector accommodation, who may need to be admitted following a deterioration in their level of disability or disturbance. This can lead to friction between statutory and voluntary/independent providers, which perceive a lack of support from statutory services. These issues can only be challenged by real partnership working, which might include NHS outreach support to independent-provider units and shared training programmes. Similarly, if problems of stigma are to be tackled effectively, community-based units must adopt a consistent and prolonged approach to engaging the minority of potentially destructive members of the general public who have negative, prejudiced attitudes (Penn et al, 1994).
Key factors for ensuring the quality of care in community units are summarised in Box 3
.
Box 3 Key elements of high-quality care in community units
|
| Conclusions |
|---|
|
|
|---|
| Multiple choice questions |
|---|
|
|
|---|
|
| References |
|---|
|
|
|---|
Allen, C. I., Gillespie, C. R. & Hall, J. N. (1989) A comparison of practices, attitudes and interactions in two established units for people with a psychiatric disability. Psychological Medicine, 19, 459467.[Medline]
Anstee, B. H. (1985) An alternative form of community care for the mentally ill: supported lodging schemes. Health Trends, 17, 3940.[Medline]
Audit Commission (1994) Home Alone: The Housing Aspects of Community Care. London: Audit Commission.
Bartlett, C., Holloway, J., Evans, M., et al (2001) Alternatives to psychiatric in-patient care: a case-by-case survey of clinician judgements. Journal of Mental Health, 10, 535546.
Beecham, J., Hallam, A., Knapp, M., et al (1997) Costing care in hospital and in the community. In Care in the Community: Illusion or Reality? (ed. J. Leff). London: John Wiley & Sons.
Boardman, A. & Hodgson, R. (2000) Community in-patient units and halfway hospitals. Advances in Psychiatric Treatment, 6, 120127.
Borge, L., Martinsen, E. W., Ruad, T., et al (1999) Quality of life, loneliness and social contact among long-term psychiatric patients. Psychiatric Services, 50, 8184.
Brooke, D., Taylor, L., Gunn, J., et al (1996) The point prevalence of mental disorder in unconvicted male prisoners in England and Wales. BMJ, 313, 15241527.
Carling, P. J. (1993) Housing and supports for persons with severe mental illness: emerging approaches to research and practice. Hospital and Community Psychiatry, 44, 439449.
Carson, J., Shaw, L. & Wills, W. (1989) Which patients first? A study from the closure of a large psychiatric hospital. Health Trends, 21, 117120.[Medline]
Chisholm, D. & Hallam, A. (2001) Changes to the hospitalcommunity balance of mental health care: economic evidence from two UK studies. In The Treatment of Schizophrenia Status and Emerging Trends (eds H. Brenner & W. Boeher), pp. 210224. Kirkland: Hogrefe & Huber.
Department of the Environment, Transport and the Regions (2001) Supporting People Policy into Practice. London: DETR.
Department of Health (1991) Residential Needs for Severely Disabled Psychiatric Patients: The Case for Hospital Hostels. London: Department of Health.
Department of Health (1996) The Spectrum of Care. London: HMSO.
Department of Health (1998) Partnerships in Action New Opportunities for Joint Working between Health and Social Services. A Discussion Document. London: HMSO.
Department of Health and Social Security (1981) Care in the Community. London: HMSO.
Durbin, J., Cochrane, J., Goering, P., et al (2001) Needs-based planning: evaluation of a level of care planning model. Journal of Behavioural Health Services and Research, 28, 6780.[CrossRef][Medline]
Faulkner, A., Fidd, V. & Lindsey, J. (1992) Who Is Providing What? Information about UK Residential Care Provision for People with Mental Health Problems. London: Research and Development for Psychiatry.
Fitz, D. & Evenson, R. C. (1999) Recommending client residence: a comparison of the St Louis Inventory of Community Living Skills and global assessment. Psychiatric Rehabilitation Journal, 23, 107112.
Franklin, B. J. (1998) Forms and functions: assessing housing need in the community care context. Health and Social Care in the Community, 6, 420428.
Hyde, C., Bridges, K., Goldberg, D., et al (1987) The evaluation of a hostel ward. A controlled study using modified costbenefit analysis. British Journal of Psychiatry, 151, 805812.
Järbrink, K., Hallam, A. & Knapp, M. (2001) Costs and outcomes management in supported housing. Journal of Mental Health, 10, 99108.[CrossRef]
Johnson, S., Thornicroft, G. & Strathdee, G. (1996) Population-based assessment of needs for services. In Commissioning Mental Health Services (eds G. Thornicroft & G. Strathdee). London: HMSO.
Keck, J. (1990) Responding to consumer housing preferences: the Toledo experience. Psychosocial Rehabilitation Journal, 13, 5158.
Kinane, C. & Gupta, K. (2001) Residential care homes for the mentally ill. Implications for a catchment area service. Psychiatric Bulletin, 25, 5861.
Lamb, H. R. (1998) Deinstitutionalisation at the beginning of the New Millennium. Harvard Review of Psychiatry, 6, 19.[Medline]
Leff, J. (1997) Care in the Community: Illusion or Reality? London: John Wiley & Sons.
Lelliott, P. (1996) Meeting the accommodation needs of the most severely mentally ill. Journal of Interprofessional Care, 10, 241247.
Lelliott, P. & Wing, J. A. (1994) A national audit of new long-stay psychiatric patients. II: Impact on services. British Journal of Psychiatry, 165, 170178.
Lelliott, P., Audini, B., Knapp, M., et al (1996) The mental health residential care study: classification of facilities and descriptions of residents. British Journal of Psychiatry, 169, 139147.
Macpherson, R. & Jerrom, W. (1999) Review of twenty-four-hour nursed care. Advances in Psychiatric Treatment, 5, 146153.
Mann, S. & Cree, W. (1976) New long stay patients: a national survey of 15 mental hospitals in England and Wales 1972/3. Psychological Medicine, 6, 603616.[Medline]
Maslow, A. (1962) Towards a Psychology of Being. London: Van Nostrand.
Middleboe, T., Mackeprang, T., Thalsgaard, A., et al (1998) A housing support programme for the mentally ill: need profile and satisfaction among users. Acta Psychiatrica Scandinavica, 98, 321327.[Medline]
MILMIS Project Group (1995) Monitoring inner London mental illness services. Psychiatric Bulletin, 19, 276280.
Ministry of Health (1962) The Hospital for England and Wales. London: HMSO.
Mueser, K., Bond, G., Drake, R., et al (1998) Models of community care for severe mental illness: a review of research on care management. Schizophrenia Bulletin, 24, 3774.
Murphy, E. (1992) The effects of NHS reorganisation on forensic psychiatric services. Journal of Forensic Psychiatry, 3, 1330.
Nelson, G., Brent Hall, G. & Walsh Bowen, R. (1997) A comparative evaluation of supportive apartments, group homes and board and care homes for psychiatric consumers/survivors. Journal of Community Psychiatry, 25, 167188.
Penn, D., Greyman, K., Daily, T., et al (1994) Dispelling the myth of schizophrenia: what information is best. Schizophrenia Bulletin, 20, 567578.
Reed, J. L. & Lyne, M. (2000). In-patient care of mentally ill people in prison. Results of a years programme of semi-structured inspections. BMJ, 320, 10311034.
Robson, C. E. (1995) Assessment of dependency level and community placement for the long term mentally ill. Psychiatric Bulletin, 19, 467469.
Rose, D. & Muijen, M. (1997) Nursing doubts. Health Services Journal, 107, 3435.[Medline]
Segal, S. P. & Kofler, P. L. (1993) Sheltered care residences: ten-year personal outcomes. American Journal of Orthopsychiatry, 63, 8091.[Medline]
Shepherd, G. (1998a) Social functioning and challenging behaviour. In Social Functioning and Schizophrenia (eds K. T. Mueser & N. Tarrier), pp. 407423. New York: Allyn Bacon.
Shepherd, G. (1998b) System failure? The problems of reductions in long stay beds in the UK. Epidemiology and Social Psychiatry, 7, 127134.
Shepherd, G. & Murray, A. (2001) Residential care. In Textbook of Community Psychiatry (eds G. Thornicroft & G. Szmukler), pp. 309320. Oxford: Oxford University Press.
Shepherd, G., Muijen, M., Dean, R., et al (1996) Residential care in hospital and in the community quality of care and quality of life. British Journal of Psychiatry, 168, 448456.
Shepherd, G., Beardsmore, A., Moore, C., et al (1997) Relation between bed use, social deprivation and overall bed availability, in acute psychiatric units and alternative residential options: a cross sectional survey, one-day census date and staff interviews. BMJ, 314, 262266.
Simpson, C. J., Hyde, C. E. & Farragher, E. B. (1989) The chronically mentally ill in community facilities. A study of quality of life. British Journal of Psychiatry, 154, 7782.
Strathdee, G. & Jenkins, R. (1996) Purchasing mental health care for primary care. In Commissioning Mental Health Services (eds G. Thornicroft & G. Strathdee). London: HMSO.
Tanzman, B. (1993) An overview of surveys of mental health consumers preferences for housing and support services. Hospital and Community Psychiatry, 44, 450455.
This article has been cited by other articles:
![]() |
H. Killaspy From the asylum to community care: learning from experience Br. Med. Bull., January 23, 2007; (2007) ldl017v1. [Abstract] [Full Text] [PDF] |
||||
|
|