Robert Chaplin is a research fellow at the Royal College of Psychiatrists Research and Training Unit (CRTU) (21 Mansell Street, London E1 8AA, UK. Email: rchaplin{at}cru.rcpsych.ac.uk) and a consultant in general adult psychiatry at Oxfordshire Mental Healthcare NHS Trust. He has interests in audit and learning disability. Paul Lelliott is Director of the CRTU and a consultant psychiatrist employed by Oxleas NHS Trust, where he works as a member of a community mental health team. Alan Quirk is a research fellow at the CRTU. As a research sociologist he has used qualitative methods to study psychiatristpatient communication in a range of situations, including Mental Health Act assessments, ward rounds on acute wards and out-patient consultations. Clive Seale is a professor of sociology at Brunel University. He is author of many books and articles on aspects of medical sociology and social research methods. He is presently pursuing projects in the fields of psychiatry, end-of-life care and treatment of health issues by the mass media.
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Many of the challenges that psychiatrists face in maintaining a therapeutic alliance with patients with psychosis are no different from those involved in working with patients with other chronic mental health problems. These include the need for a long-term therapeutic relationship, changes in capacity and insight, and the possibility of making compulsory decisions under the Mental Health Act 1983. The findings from this study might therefore be relevant to the care of patients prescribed other classes of drugs or with other disorders. There are two important things to note when reading this article. First, our study was not a survey of actual consultations: psychiatrists may deviate in real life from the practices they espouse. Second, it provides only suggestions about working practices; there are no clear right or wrong ways of working and some of the practices described here may seem inappropriate to some readers.
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Most of the research aimed at improving consultation style has been in general practice. For example, educational interventions to improve consultation style have led to better practice by reducing the rate of prescribing of unnecessary medications for people with sore throats. A similar attempt to improve outcome of patients with depression in primary care by changing the style of consultations has produced more mixed results (Gask et al, 2004). We are not aware of any study that has investigated the impact of training on psychiatrists relationships with patients or on their prescribing behaviour. It is hoped that this article might contribute to the debate about what such training might consist of and what it might achieve.
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You do have to ask the closed questions too, but theres ways of doing it. Its about sort of fitting them in, in amongst the things that maybe the patient wants to talk about, which isnt always their voices ... young psychotic men often have their own way of describing their own experiences and one way to upset them is for a new psychiatrist to come in and say "Well, how are the voices at the moment?" And it can often be a reason for not coming back.
An attempt to empathise with the patients psychotic experience is shown in the following:
I think I try to get some idea of the persons experience and feelings about illness and the way they think about it ... I will sometimes use words that the person themselves has used, or refer to some experience that they told me about, perhaps some time ago, and try to build that in, so I hope the whole thing makes more sense to the person.
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If someone has, say, delusions and they feel the devil is chasing after them or something, if you say to someone "You have schizophrenia" youre going to clash against their own belief.
One possible approach, as illustrated by the following extract, is to introduce the concept of diagnosis by asking the patients views first and to follow that with the patients own explanation:
Im always happy to give them the diagnostic words but I would usually say "You know whats the matter with you, you can describe whats the matter with you better than I can. This is the word that us doctors use for what youve got" .
The psychiatrist might circumvent the need to refer to a diagnosis by instead talking about specific symptoms or problems in an area of functioning that might be helped by medication:
The challenge is to find common ground, do they believe they have an area of difficulty that ... might affect their concentration, or their ability to do what their brothers doing or hold down a job? Then you have to build up from the common difficulty that you both agree on to the point where medications accepted.
An alternative approach is to explain the symptoms in order to normalise or minimise the impact of receiving a diagnosis of mental illness:
Taking medication is a sign that in fact your mind might not be working well. Thats a very difficult thing to take on board. So what I say to patients now is something around the lines of "A part of your mind is not working" .
One psychiatrist did not consider it essential to be in agreement with the patient about the exact diagnosis. It is even possible for there to be an explicit disagreement without this resulting in conflict:
We may ... agree to differ on the nature of the illness or the psychosis but agree a trial of medication that might help with sleep, or something like that.
Informing a patient about their diagnosis needs to be timed carefully and handled sensitively:
Some patients, I would probably say straight away "Look, youve got a disorder which is called schizo-affective disorder, schizophrenia". Other patients, I probably wont say it, unless they ask. But if they ask, I would always tell the diagnosis... Yes, I would give the diagnosis, but not always the first time.
In summary, psychiatrists need to exercise considerable skill in deciding the extent to which diagnosis should be discussed, the exact language to be used and the timing of the discussion. The aim is to match their own conceptual models of illness with the needs of individual patients, who have varying degrees of insight and different needs at different phases of their illness.
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I genuinely see us as in it together, if you like, that its a partnership and its not going to work if I am somehow in a position of superiority and theyre in a subordinate subject position. I think it just wont work.
Some ways of achieving this alliance are outlined in Box 1
. The quotations below, again from our interview study with psychiatrists, illustrate techniques in achieving shared decision-making with patients. The first is an example of how a psychiatrist described attempting to strike a bargain with a patient who was reluctant to continue antipsychotic medication:
Box 1 Techniques for establishing a therapeutic alliance
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He decided that he wanted to come off medication, and I discussed it with him and he was continuing to use cannabis, and he was eventually insistent that he was going to stop it [the medication] and I said I would allow it. As a quid pro quo perhaps he would agree to stop using cannabis.
In the following extract a psychiatrist shows the need to tolerate and feel comfortable about disagreement when it is not possible to reach agreement with a patient:
I just think hes the one having the injections in the end, he hates them so much, well just have to go for something else.
Remaining calm, giving patients time and not appearing rushed were all seen as important. These can be understood as the avoidance of a relationship involving high expressed emotion (Tattan & Tarrier, 2000). Finally, the quality of being human with patients is shown below by a psychiatrist who wanted to give the impression of providing a personal service:
I do realise that its a deception, but its a way of making the patient think that I have a personal recollection of their personal situation Ill jot down the names of their children or whatever [in the notes] so that Im able to at least have a person think that I know something about their personal life.
The judicious use of humour is seen by another psychiatrist as further enhancing the therapeutic alliance where a good alliance already exists:
I will write what I am wanting the person to have on a compliments slip so that they can show it to the GP or the receptionist ... sometimes I might put a little joke on it, so its more of a personal message.
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[A man] who had schizophrenia but was convinced he did not have a mental health problem of any type and really didnt want to be seen ... he really didnt see the point in seeing anybody, so I called at the house without warning in advance, or else he might have left, ... apologised and said "Its all part of system follow-up", trying to locate the blame in some bureaucratic system, and said "I really apologise. Now Im here, can we talk these things through?" .
Other controversial issues relating to the therapeutic alliance are presented in Box 2
. Within the therapeutic alliance psychiatrists accept that it is at times necessary to take more control in the making of treatment decisions or to become directive.
Box 2 Controversial issues
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Sometimes one has to act in a slightly paternalistic way, that you think, well I know this patient needs this. I know its going to make a major difference to their lives and the chance of them getting these things is probably quite small so lets try and go with it and again it depends on the patient.
The use of a directive style by psychiatrists might be seen by others as potentially coercive, as shown by the extract below:
I sometimes have to say really tough things to people ... where Im going to have to say to them "Look, youre running away from this issue and youre going to go on being stuck unless you deal with this a different way" .
The following extract outlines a situation where a psychiatrist anticipates employing a coercive approach:
You would like the individual to be aware that there are options but you also want them to fully understand the implications of not agreeing. So that whereas in the first part of the interview you might be presenting the case more from the positive gains, it might be that later on in the interview if you feel that they are not keen to go down that route you then might have to bring in the realities ... I wouldnt immediately move into a sort of coercive "You will do this because I am the doctor" strategy, but it might be that you then say "Well, its obviously your decision but it might be that if we dont get on top of it quickly that youre going to end up in hospital or have to stop work for a while", so you want them to be fully aware of the implication of not going on with the medication plan.
The importance of being explicit about the possible use of coercion was stressed by another psychiatrist:
If it gets to the stage when youre going to have to force them Id rather be straight about that as well... I think she knows Im straight ... and shes agreed that if she does relapse shell come and see me and well admit her voluntarily.
Nevertheless, coercion was seen as reflecting a temporary failure of collaborative methods where a return to shared decision-making would be attempted once the patients clinical state had improved:
Hes on a depot injection now and hes got a lot of objections to it ... and in fact Im not going to carry on with it ... he has decided against this medication... Hes now well enough to make a reasonable argument about it all ... and I think in the longer run its really the only way.
Finally, this psychiatrist illustrated the importance, when confronted with a situation in which coercion is being used, to remain patient and avoid conflict:
I felt I had to be very firm, very direct with him: "I need to know are you going to think about this, have you thought about it? Are you going to think about it?" and the best decision I got from him after about ten minutes of standing, I actually tried to stop myself laughing, realising how ridiculous this was, he eventually said that he would tell me next week.
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I think one of the problems is that we need to find out about the side-effects. Quite often patients dont identify certain symptoms as side-effects so they need to be enquired about in a more systematic way rather than just asking someone if theyve got side-effects.
Although psychiatrists reported that side-effects were more likely than anything else to lead to non-adherence, they encountered many problems in discussing them without adversely affecting their patients motivation to take medications:
If you emphasise too much the side-effects sometimes you feel that you are increasing the probability of the person saying "No, I dont want to take this medication" .
However, many studies of this aspect of patient education have failed to show that it has any adverse effects on outcome (e.g. Chaplin & Kent, 1998). Other psychiatrists preferred to be frank at the beginning of treatment:
The best way of dealing with it is actually pre-empting the things, tell them from the outset. I try to, but you know, the most common side-effects, Im sure you are aware, are weight gain, effect on libido, feeling tired and so on, I try to pre-empt that.
Another complicating factor is the patients capacity to be able to make an informed decision about treatment. To this psychiatrist, a potential solution was to defer the discussion about side-effects to a later date:
I try to engage the person and get them on medication to the point that they are no longer psychotic and then I have a more in-depth discussion.
Other barriers to discussion of side-effects include perceived limits of psychiatrists knowledge about all possible side-effects and the impracticality of discussing every single one:
You cant say all of the potential side-effects, because some of them are very rare.
Smith & Henderson (2000), using a postal questionnaire, revealed that psychiatrists were selective about which side-effects they discussed. Laugharne et al(2004) found considerable international variation between psychiatrists in the extent to which they discussed tardive dyskinesia with patients. It seems likely that there is individual variation in the discussion of side-effects, although no recent studies have reported on this. A potential solution to the need for disclosure was suggested in the routine provision of written information about medication and advice on the internet:
I dont literally intentionally bombard them but you can give them a lot of information about the side-effects... That can be quite overwhelming so you have to have patience to simply allow them to go away, or ask them to go away and think about it. You send them away with written information and websites.
In conclusion, practice in informing patients about side-effects is influenced by many factors, including the types of side-effects, individual variations in practice, the severity of the patients illness and the patients needs. In a recent study, however, 50% of patients claimed to have received no information at all before starting antipsychotic medication (Olofinjana & Taylor, 2005). There is a need for observational studies to investigate the extent to which side-effects are discussed and practical methods for discussing them.
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Ive certainly become more comfortable over the years with coping with the anxiety of my patient saying "No, Im not going to take my medication doctor because I dont think I need it.
The extract below illustrates an attempt to promote an honest disclosure of non-adherence by normalising the experience, with the use of brief self-disclosure:
"OK, so you missed it well, we all miss things. Thats OK lets see how we can help you stay on it if thats what you want to do" ... youve got to save face.
Boxes 3
and 4
summarise techniques described by psychiatrists for detecting and managing non-adherence. None of the psychiatrists we interviewed reported using formal compliance therapy (Kemp et al, 1996), nor was this said to be employed by other members of the community mental health team (CMHT). However, methods of interview that corresponded with techniques that might be included in compliance therapy were used:
Box 3 Techniques for discovering medication use
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| Box 4 Ways of improving adherence Prevention
Psychological strategies
Alternatives to medication strategies
Other techniques
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Just keep up a low-key discussion of the pros and cons and use motivational interviewing type of thing.
Some more specific techniques are illustrated below and include exploring the patients ambivalence to taking medication:
Patients can feel that their autonomy, their independence as human beings, is being undermined by the use of tablets, which also is quite understandable and is something we should discuss.
When identifying the drawbacks of medication, this psychiatrist discussed the meaning of taking it and, in particular, the experience of stigma:
Similarly with drugs, that they dont like being on it, that theyre not well motivated to be on it, that they dont like side-effects, that they resent a label of psychiatric illness, that they feel stigmatised, that they want to be "normal" .
The promotion of self-efficacy through medication is illustrated in the extract below:
Its important that the patient doesnt blank me out because ... its just reinforcing the sense of having no control of their lives, which psychosis is already imposing on them ... Its about giving a perspective, a sense of, its their life, their choice, but they are taking a risk, and do they know what risk theyre taking?.
The metaphor of medication as a coping mechanism is illustrated as follows:
Very often I say to people, what is their view of the medication? Is it something that is doing something to them or do they see that as something they use to help them, to stay well? So that actually it becomes a coping mechanism, taking the medication is a coping mechanism, rather than a must do or an imperative, something you do, or have to do. So you try and build up a sense of mastery, using it as a coping mechanism.
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MCQ answers
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This article has been cited by other articles:
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R. Chaplin How can clinicians help patients to take their psychotropic medication?: Invited commentary on... Why don't patients take their medicine? Advan. Psychiatr. Treat., September 1, 2007; 13(5): 347 - 349. [Abstract] [Full Text] [PDF] |
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