Stuart Turner is a consultant psychiatrist at the Traumatic Stress Clinic (73 Charlotte Street, London W1P 1LB, UK. Tel: 020 7530 3666), where his focus is on adult trauma reactions, and the Oscar Hill Service (community-based dialectical behaviour therapy (DBT) for people with borderline personality disorders) in Camden and Islington Community NHS Trust and University College. In addition, he is Director of Research and Development for the North Central London Community Research Consortium, Chair of the UK Trauma Group, Board Member (past-President) of the European Society for Traumatic Stress Studies and Member of the Executive Committee of the ISTSS/United Nations project on trauma. His research interests include the nature of complex trauma reactions, the mental health needs of refugees and the provision of appropriate services, and an evaluation of DBT in the treatment of people with borderline personality disorder.
When asked for advice about a survivor of torture (or of some other form of organised state violence), there are at least two people to consider. In addition to the needs of the patient, those of the person asking for advice the health professional must be taken into account. There are some forms of violence which can damage others, even in the controlled circumstance of a consulting room. There is a context, often a community or a family, in which the person exists. This paper will first address some of these broader issues before going on to consider some of the narrower, more technical, matters of best available treatment.
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These are some of the feelings that people may experience in work in this area. We all need to guard against these responses. The best advice for clinicians is to stay true to their professional therapeutic relationship and also to consider their personal supervision needs particularly carefully in this sort of work. This does not mean that they should not reflect on what they have heard, or act on these reflections in other settings; it simply means that allowing other issues to intrude into the treatment relationship may itself be problematic.
| Box 1. Countertransference feelings in clinicians Hopelessness Omnipotence Punishment Avoidance
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Although PTSD represents a useful diagnostic entity, it does not go far enough in explaining the wide range of symptomatology seen in torture survivors. In 1990, four common elements to the torture reaction were identified (Turner & Gorst-Unsworth, 1990). These were: PTSD (incomplete emotional processing); depressive reactions secondary to loss and adverse life events; somatoform symptoms; and probably most significant of all, the effect on personal value systems for example, changed personal religious or political thinking or core beliefs in a just or meaningful world. In other words, PTSD is an important but insufficient diagnosis to explain the whole of the reaction to torture.
| Box 2. Diagnoses of torture survivors Many have no psychiatric condition Common diagnoses are depression and PTSD More complex reactions include enduring personality change
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| Box 3. Enduring personality change after catastrophic experience (abbreviated, from ICD10; WHO, 1992) This condition may occur following extreme stress (e.g. concentration camp experiences, torture and hostage situations). It may follow PTSD and is a chronic, irreversible sequel of a complex traumatic experience. It is characterised by permanent, irreversible, changes in the following domains:
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There are other limitations. Mollica & Caspi-Yavin (1992) have questioned whether PTSD is a meaningful diagnostic category in other (non-Western) cultures. De Silva (1993) emphasises the importance of the sociocultural meaning of trauma, not only in relation to issues such as shame, social networks and vulnerability, but also as an aid to therapy. However, more recently, reports confirming the importance of PTSD (and depression) in a range of cultural groups (e.g. Cambodian as well as Bosnian refugees) have emerged (Mollica et al, 1998; Mollica et al, 1999). These suggest that although the experience of the trauma itself is personal and may be significantly affected by social and cultural expectations, the PTSD response is a relatively stereotypic condition.
Following a severe, malicious and often prolonged experience such as torture undergone within a political context, many people respond with no psychiatric disorder (although the experience still has its impact); others present with several disorders. The two most common simple diagnoses are PTSD and depression. These commonly coexist (e.g. van Velsen et al, 1996). However, somatoform complaints, panic disorder and dissociative disorders may also be important in some people. The dissociative response to trauma, for example, is certainly not restricted to childhood trauma. It may lead to severe repetitive dissociative fugue states that have clinical and sometimes medico-legal implications.
One of the most important difficulties is inevitably to do with alteration in personal beliefs. This may affect, for example, religious or political values, and the ability to relate normally to others. In diagnostic terms, the ICD10 diagnosis of enduring personality change after catastrophic experience is a helpful addition to the classification system (see Box 3
; World Health Organization, 1992). It captures well some of the problems of isolation, emptiness and mistrust that may follow torture or prolonged hostage-taking. It is an example of a complex trauma reaction.
This move beyond simple psychiatric diagnoses into the realms of complex trauma reactions is helpful because it moves the survivor away from a sense of being reduced simply to a naïve categorisation and allows the individuality of the experience and, importantly, its social and political context to be considered. However, in taking this step, it is also important that the advances which have been made in the understanding of some of the simple trauma reactions and their treatment are not ignored. It is important to find the right balance, acknowledging that these conditions (especially PTSD and depression) are common and that they may be treatable, while at the same time recognising the complex and human nature of the experience and of the response. We need to avoid the hopelessness versus omnipotence dichotomy in therapeutic responses.
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It is essential in thinking about the social effect to have a formulation of purpose. Why do states carry out torture? This is complex, but one way of looking at it is to regard torture as a form of communication. Seen in this way, it is a means of declaring to the target community (while offering denials to the majority or ruling community) that this is a form of violence to which any individual member of that group can be subjected. It may be for this reason that survivors of severe torture are released. Their presence acts as an example to others. However, it does more than this. Individuals released from torture may also act as a focus for uncertainty and mistrust. How much did they reveal? What was done to them? Were they raped? It is a form of experience that goes to the heart of our capacity to relate one to another. It tends to breed mistrust. Indeed, this combination of fear and mistrust may be a major part of the method of repression. It also leads on to some potential problems in the therapeutic setting. How can survivors trust us? What is our position in their world model? What is their prior experience of health professionals or of people in positions of authority?
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This is a helpful approach to organising the therapy of the torture survivor. It highlights the importance of considering trust and primary needs first. It places treatment for psychiatric disorders second. It emphasises that after symptom relief, more work is required in adaptation to the trauma before recovery can be said to have occurred.
The development of trust and a therapeutic alliance are essential components in engaging the patient. The therapist should be encouraging, patient and empathic, but also permit time for the survivor to express anger and vengefulness. The therapist may need to be prepared to declare an open commitment to supporting human rights issues in general, at the same time remaining objective with regard to the specific conflict (Turner, 1992). This commitment may need to be made explicit for some survivors to be able to trust their therapist. For therapists working in the country of repression, this often places them at considerable personal risk (Cienfuegos & Monelli, 1983). It is also important that therapists have an understanding of the cultural background from which their patient comes. This includes not only a knowledge of the social and political context of his or her country, but also the unique meaning that the torture and its resultant symptoms symbolise for that person. Whichever treatment the therapist adopts, it should be consistent with the cultural expectations of the survivor (Kinzie, 1989).
| Box 4. The structure of intervention Safety first: addressing primary needs, trust and stabilisation Treatment:
Re-integration (with refugee and/or host community)
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Wherever survivors of torture are to be found in the country of torture, a neighbouring country or in a more remote context these matters are always important. Thus, some people may be living undercover in a country of persecution, in fear, with families split apart. Others may be in large refugee camps, over the frontier, often for long periods, sometimes experiencing continuing covert persecution from violent groups. A few find their way to countries like the UK. Here, they often face extremely long delays before their applications for asylum are finally resolved and may spend substantial periods in detention centres or even in prison.
A psychiatrist should be able to acknowledge the importance of these primary needs. Quite often, in a multi-professional team, others will be charged with offering assistance with some of the practical aspects. However, a psychiatrist working with refugees should develop a sufficient familiarity with the law on asylum to be able to offer relevant professional advice to those charged with making decisions about asylum, family union and (in the interim) welfare needs. He or she should be sufficiently up to date on, for example: the complex matter of memories after severe trauma (including issues related to basic threat perception); problems of concentration in depression and PTSD; the way that people who have been raped or sexually abused often find this a shaming experience that they are reluctant to discuss (e.g. van Velsen et al, 1996); and the nature and importance of dissociation and chronic hyperventilation in torture survivors. Each of these issues stands to affect the competence of the survivor to provide a detailed, accurate witness statement, and may have a direct bearing on the adjudication of their case.
Often, a psychiatrist is in a unique position to comment on these technical matters in relation to any psychiatric disorders that may be present. Once again, care is required in order to ensure that the psychiatrist is serving the court and aims for the highest professional standards. It is through providing the best available evidence that fair and just decisions are most likely to be made over the long term. Unfortunately, this is an area in which few psychiatrists or other health professionals have had any formal training and in which standards of practice are often low (sometimes very low indeed). It relates to an area of primary need (safety from unjust persecution) and, bearing in mind the significance of the decision, it is vital that the best advice is made available.
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Testimony
The testimony method was first used in Chile. It attempts to achieve a written record of the experiences of survivors, a record that is theirs to possess and to use as they wish. Gradually its therapeutic benefits became apparent and it then provided a model for psychotherapy. Its central tenet is the re-telling of the trauma story. However, the treatment is structured so that after a period of establishing trust, the sessions are tape-recorded and transcribed. These transcripts are the material of future sessions and are revised and developed by the survivor until at the closure, there is a comprehensive account. The survivor is an active participant in therapy, the therapist's role being one of clarification, encouragement and witnessing. By developing a complete picture from fragmented sequences, patients can learn to "identify, understand, and integrate the meaning of their political commitment and their suffering" (Cienfuegos & Monelli, 1983).
This method has been modified for use in host countries (Agger & Jensen, 1990). As testimony proceeds, psychological reactions such as aggression are addressed and symptoms are reframed. For example, the guilt (associated with excessive responsibility) felt after divulging information against comrades or family can be reframed as understandable, perhaps even inevitable, in the face of extreme pain and powerlessness. Testimony typically lasts between 12 and 20 weekly sessions. Agger & Jensen (1990) stress the importance of using and maintaining refugees' political commitment and ideology in therapy. In other words, this is an approach that combines direct therapeutic exposure for the trauma (useful for PTSD) with complex reattribution of meanings to events. It takes account of the socio-political context, making it an acceptable approach for many survivors, as well as using effective ingredients of treatment for PTSD. An open trial has provided evidence of symptom reduction following an average of six out-patient sessions using testimony (Weine et al, 1998).
Cognitivebehavioural approaches
The fear response, triggered by cues resembling the original trauma, may be a persisting reaction to torture. Methods that tend to lead to habituation of this response would be expected to be useful in recovery and the evidence is that this is the case. Meta-analyses (Sherman, 1998; van Etten & Taylor, 1998) have shown that the trial evidence supported cognitivebehavioural approaches for PTSD.
These methods often include a strong element of direct therapeutic exposure in much the same way as for other anxiety disorders as well as a cognitive approach. Exposure-based approaches in PTSD have included asking survivors to audio tape sessions. They are asked to recount in detail, in the present tense and in the first person, what happened to them. Later, they are asked to replay this material as homework.
The question that has to be addressed is the degree to which these approaches are useful in the aftermath of torture. Basoglu (1992) has stressed the importance of not overwhelming the patient by covering too much material in one session, as this may interfere with emotional processing. Sherman (1998) also points out some of the limitations of the exposure paradigm.
At this stage of knowledge, no dogmatic statement can be made. However, an emphasis on control strategies (teaching people how to deal with high arousal, how to use the place of safety paradigm and how to control dissociation) is likely to be especially important in the early phases of treatment in the aftermath of torture in those who do have PTSD. Exposure approaches should be introduced slowly, if at all, and monitored carefully.
There is another aspect of the exposure paradigm that may be problematic. Where shame or guilt are the dominant emotional reactions, it is possible that exposure may have the perverse effect of sensitising people to these states rather than leading to habituation. In these situations, a cognitive approach, exploring carefully the meaning of the trauma, and the distorted thinking that the torturer may have produced, is much more appropriate. This analysis is consistent with the analysis of testimony that there is a need to combine sensitively direct therapeutic exposure and reframing or cognitive restructuring.
Pharmacotherapy
In the aftermath of torture, perhaps more than in other trauma reactions, medication undoubtedly has a place. In the presence of a depressive reaction, it has all the values of treatment of that condition. Some patients experience the usual barriers to the treatment of depression, including a failure of recognition and the half-hearted use of medication once the decision has been made to use drug treatment. However, there is one specific barrier in this group and this relates to the reaction of the doctor. Although the cause of the depression is clear enough in most cases, and it is understandable psychologically, this is no more reason to avoid treatment than it would be in the depression of terminal cancer.
There is increasing evidence to show that severe trauma can produce long-lasting neurobiological changes especially implicating mechanisms of arousal, threat orientation and perception and that these are associated with the clinical syndrome of PTSD. There is good evidence that antidepressant medication can be an effective method of treating this disorder as well as depression (Turner, 1999).
To date, there have been no controlled trials examining the efficacy of medication in the treatment of torture survivors. The current literature consists of open trials and case reports and thus treatment remains empirical. Two points need to be mentioned before describing drug treatments. First, cultural aspects of psychopharmacology need to be taken into consideration when prescribing for survivors; it has been suggested, for example, that side-effect profiles may vary. In addition, since many patients continue to show problems of adjustment, medication is appropriately given in combination with some sort of psychotherapy, for additional therapeutic benefit.
There is evidence of effectiveness of traditional antidepressant medication in the treatment of PTSD (e.g. Solomon et al, 1992). More recent work has indicated that reversible monoamine oxidase inhibitors (Katz et al, 1995) may also help but that the selective serotonin reuptake inhibitors (SSRIs; Davidson & van der Kolk, 1996) may be of particular value (van Etten & Taylor, 1998; Foa et al, 1999). Minor tranquillisers do not have any place in the routine treatment of PTSD. Randomised controlled trials suggest that clinicians need to be prepared to prescribe medication at doses towards the top of the therapeutic range and to wait for up to eight weeks before deciding that a particular approach is ineffective.
Family, group and other therapies
For survivors of torture, having an intact family is a blessing that many do not experience. All too often, families are separated. This may occur in the country of torture, with one or more family members in hiding. It can also affect refugees. Many refugees have described the feelings they have when they come to the UK, believing that their case would be settled quickly and that their family would be able to join them shortly afterwards, only to find that this was nowhere near the case. This is the material for survivor guilt.
Where families have been united, they may have had very different experiences. A family approach may provide a useful component in overall treatment (Figley, 1988). Family and marital therapy may be required after the family has been reunited to resolve conflicts and allow re-integration.
Expressive approaches such as play, music and art therapy may be useful in children and adults, both for assessment and treatment. There is no good evidence of efficacy, however.
For a number of reasons, group therapy has not been widely used with torture survivors, and its possible benefits have not been evaluated in any systematic way. From the practical point of view, groups in countries of asylum may lack cohesiveness, being made up of people from differing political, ethnic and linguistic backgrounds. For some, talking about personal problems in a group context is a foreign concept, and is not a culturally and politically acceptable treatment option. Despite these limitations, Fischman & Ross (1990) have developed a model for time-limited group therapy for exiled survivors of torture. They suggest that members should be as homogeneous as possible, and have shared a similar type of experience. The authors stress the importance of placing traumatic experiences in the appropriate socio-political context.
In the context of marital treatment, especially, it is important to be aware that sexual torture is widely perpetrated (against both males and females), although it is commonly not disclosed initially and may even be denied. There are often pronounced feelings of shame. Treatment must take into account the confusion and threat to sexuality that it represents (Agger, 1989). Even where specific sexual torture has not taken place, sexual difficulties appear to be common.
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Treatment of torture survivors is greatly complicated in a bicultural setting. Since the newly arrived asylum seeker may be unable to speak the language of his or her adopted country, interpreters or (preferably) bicultural therapists become essential components in the process of assessment and treatment. They should not act merely as translators, but as culturally appropriate and empowered agents operating with a therapist (interpreter) or independently (bicultural therapist), allowing a clearer understanding of both verbal and non-verbal communication and evaluating the cultural significance of what is being said (Mollica, 1988; Kinzie, 1989). It goes without saying that a particular therapist, interpreter or bicultural worker should be acceptable.
Recent experience (in the Traumatic Stress Clinic) in establishing a bicultural project for the Bosnian community emphasises the value and acceptability of this approach. By placing this bicultural project within a specialist National Health Service (NHS) unit, the therapists also had the advantage of easy access to experienced clinical psychologists and psychiatrists. This is a model that certainly merits further research.
Therapy should take place as far as possible in a setting of physical and emotional safety. Delays in obtaining refugee status must be seen as barriers to effective therapy (van der Veer, 1992). At all stages, careful explanation and education are required, and anything resembling interrogation should be avoided. Thoughtful consideration is needed before performing physical examination or investigation, as procedures such as venepuncture, electrocardiogram or electroencephalogram may provide uncontrolled reminders of the torture experience.
Finally, there is the issue of treatment in a hospital setting. Admission to an in-patient unit is entirely appropriate in the unusual situation of a psychotic condition. However, for severe depression or for PTSD, it is a solution with its own problems. Imagine how it might feel to be an asylum seeker, a survivor of torture, confused at the delays, worried about family, unable to speak naturally (if at all) in the host country's language, and then to be admitted to a typical in-patient unit mixing with people who are psychotic, sometimes disturbed in thought and behaviour. It can be a terrifying experience and one that may serve to distance people further from channels of support, rather than to make these more accessible. Great care must be taken in considering this option in people who are not psychotic and in need of treatment for this condition. Instead, attention to mobilising social support networks outside hospital is more likely to be useful and is to be strongly preferred.
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In clinical practice in the UK, it is the prolonged fear of the asylum seeker, whose case often passes through various levels of adjudication, that poses the biggest barrier to treatment. The process of initial decision-making is, sadly, often rather crude, and people whose cases are finally accepted may still have long delays and face extreme worries.
To take one example, a woman who has been serially raped as part of her experience of imprisonment not because of any crime but because of her ethnicity may find this an extremely difficult matter to disclose to officials, who do not always appear especially interested in her case. She has experienced an extreme form of violence and may be desperately afraid of what will happen to her if she is returned. However, if she has failed to disclose her rape in the initial interview, subsequent disclosure is often dismissed as indicating only that she has been helped to fabricate her case in other words, it counts against her.
She may well have all the psychological characteristics of a rape survivor, but it is not routine for UK authorities to collect expert medical evidence in such cases. Evidence obtained by her representative (if she has one) may be hard to gather, may not initially be of expert quality and is often treated with suspicion. Instead, she has to endure long delays while her case passes through the system, and it is in this state that a psychiatrist may be asked to see her. This can seem an interminable period and be associated with profound fear. It can be hard to start any form of treatment in this condition and the initial focus is more likely to be supportive.
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It has already been argued that there is a need to develop good research trials to guide the development of treatment in this complex area. Ethical research should be combined with attempts to improve public awareness of torture and the authorities' appreciation of the pattern of reactions and their significance to the assessment processes. However, most importantly, we need to examine ways in which torture can be prevented (Barudy, 1989; Allodi, 1991). As health workers, we also have a duty actively to resist medical involvement in the torture process.
In this paper, I have described an approach to developing a treatment plan. The complexity of the diagnostic pattern, the need to consider not only specific treatments but also the domains of primary need, and the process of re-integration have been emphasised. Finally, the settings of treatment and barriers to successful interventions have been described. It is likely that further work here will be rewarding. The development of bicultural therapists working at the heart of mainstream NHS mental health services is likely to be one particularly fruitful line to follow.
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